skillwithaquill's review against another edition

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challenging emotional informative reflective medium-paced

4.0


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the_vegan_bookworm's review

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challenging emotional informative reflective sad slow-paced

5.0

This was a compelling, honest look at life with chronic illness. I felt seen and heard as a person with a disability while I read Miller's recounts of her life. This book gave me a lot to reflect on in my own experiences and beliefs about (dis)ability and a meaningful life with a chronic condition, while also validating me for the fears and emotions I experience. 

If you are chronically ill or disabled, I especially recommend this book to you.

This being said, please note the trigger warnings as this book may be difficult to read for some people. Miller discusses the abuse she experienced from her alcoholic father and drug-addicted ex-boyfriend, the nitty gritty of Crohn's (including detailed references to excrement, blood and vomit), medical trauma and ableism of many kinds, and sexual assault. 

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imstephtacular's review

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dark emotional hopeful informative reflective sad medium-paced

4.0


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kennyrae89's review against another edition

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dark emotional hopeful informative medium-paced

4.0

Great book to read for people dealing with chronic illness. 

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diversifyyourshelf's review against another edition

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challenging emotional informative reflective medium-paced
Miller places a heavy emphasis on the mental and emotional toll of chronic illness, issues I don’t see discussed nearly enough! It is lonely and hard and exhausting being sick all the time, and she 1) shows us we’re not alone and validates those feelings and 2) offers help and advice from someone who has been there. 
 
I really enjoyed this book, and I do highly recommend it, with some caveats.  On one hand, I want everyone I know to read this, but on the other, Miller’s experiences, even before her diagnosis, are quite traumatic. There are descriptions of physical abuse, addiction, domestic violence, sexual assault, eating disorders (check the content warnings for the extensive list of possible triggers). 
 
I’m not at all saying that Miller shouldn’t have written this part of her story – in a lot of ways, I feel it was necessary to give a holistic view of her life experience - but it can be difficult to read. While a lot of Miller’s writing is highly specific to her and to her own diagnosis of Crohn’s, she does a good job towards the middle and end of each chapter in connecting her story to the broader chronic illness community. For sensitive readers, it may be helpful to skip the starts of each chapter. 
 
This book undoubtedly helped me, and there are actionable steps that I plan to take based on it! If you are chronically ill or are close to someone who is chronically ill, I advise you to pick this up. Thank you to Tessa Miller for using your voice to help the rest of us. And thank you to Henry Holt for sending me an advanced copy. 

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