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buffienguyen's review against another edition
emotional
hopeful
informative
reflective
slow-paced
5.0
It was a balanced combination of a personal chronic illness memoir as well as well-researched information. The author also writes very well and had many poetic lines.
So many paragraphs in this book that spoke directly to my experience. To have words that help me cope, help me understand the chaos narrative of chronic illness and chronic pain, is invaluable. Although the criticism of the healthcare system is US-specific, even someone outside of the US can relate to the feeling of not being heard by healthcare professionals, or being dismissed when deemed too complex of a case.
Life-changing read for me.
So many paragraphs in this book that spoke directly to my experience. To have words that help me cope, help me understand the chaos narrative of chronic illness and chronic pain, is invaluable. Although the criticism of the healthcare system is US-specific, even someone outside of the US can relate to the feeling of not being heard by healthcare professionals, or being dismissed when deemed too complex of a case.
Life-changing read for me.
ohwowanotherone's review against another edition
informative
reflective
slow-paced
3.0
This the author's story about her own illness, but not about chronic disease overall.
camicarreno's review
4.0
¿Habrá un tema más frustrante que las enfermedades autoinmunes y las enfermedades crónicas? Esas que no se sabe bien por qué se producen ni cómo se curan, que tienen un principio –muchas veces poco claro– y que casi nunca tienen fin. Ese es el reino invisible, el de esas enfermedades que están ahí, pero muchas veces no se ven. Algo que ha reflejado el long covid y a lo que ahora se está poniendo atención. La autora hace una gran investigación que parte motivada por su propio frustrante camino con una –o varias– de estas enfermedades.
katiepfurtado's review against another edition
emotional
informative
inspiring
reflective
medium-paced
4.5