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lucasc2000's review

4.5
hopeful informative inspiring medium-paced

My feature for the Sunday Times

~75 percent of all research spending goes toward finding the root causes of autism and the best way to "treat" autistic people...only 6 percent of its budget on "research to improve services and supports for people with [autism spectrum disorder]."~

~It is much more difficult to determine how many autistic adults there are because most testing methods are designed for children.~

~Autistic people do not need someone to decide if their lives are worth living, they need loving parents who will not inflict harm on them no matter what..parents must recognize when their own desires come at the expense of autistic people's wellbeing.~

~"Autism is a way of being. It is not possible to separate the person from the autism" [Sinclair] said. "When parents say, 'I wish my child did not have autism,' what they're really saying is 'I wish the autistic child I have did not exist.'~

~A lot of other programs are trying to turn autistic students into human beings rather than starting from the premise that they already are.~

~To be disabled, chronically ill, or autistic is to be constantly aware of your mind and your body and how the world limits them.~

~To this day, women and girls - not to mention trans and nonbinary people - are overwhelmingly underrepresented in studies about autism, leaving them underdiagnosed and ignored. But overlooking their stories often has horrific consequences that make their lives that much more difficult.~

~What clinicians see is the masking. They assume that you're nonautistic by virtue of the fact that you've developed a compensating or a passing behavior.~

~Autistic people of color recognize that as we try to navigate our identities, others simply identify us by our skin color, which can lead to dangerous or deadly consequences.~

~Many people don't get how running your fingers under cold water can make you feel completely alive.~

hcgoodno's review

4.5
hopeful informative reflective medium-paced

home_again's review

DID NOT FINISH

I just could not get into this book. But I didn't want to walk away from it without mentioning how problematic one of the points made early in the book was. The author states that if you wish your autistic child was not autistic, then you wish that they didn't exist. 

This is an unhealthy attitude, and disrespectful towards parents who naturally feel upset that their children have to struggle with a burden that they did not anticipate. It's an attitude that wouldn't apply to any physical disability. No one would ever accuse me of wishing my friend with cerebral palsy didn't exist, just because I wish that she didn't have to suffer with cerebral palsy. 

Autism may be a factor in someone's personality, and it may not be all negative, but it is still enough of a struggle in a person's life, that there's absolutely nothing wrong with wishing that they didn't have to deal with those burdens. Parents shouldn't be shamed for the natural feelings they have about their children's disabilities.

bodaciousbookbabe's review

5.0
hopeful informative inspiring reflective fast-paced
informative reflective relaxing slow-paced

ktkatp's review

5.0
hopeful informative inspiring medium-paced
beks21's profile picture

beks21's review

3.0
informative reflective medium-paced

I will admit this was not what I expected, but that isn't necessarily a negative. I am not autistic, but multiple people I love are. This book has plenty to offer regarding history, where we are today, and the people who are helping us (as in the people of the U.S.) get to where we are going.

alliemacattack's review

4.0
hopeful informative medium-paced