Reviews tagging 'Mental illness'

The Immortal Life of Henrietta Lacks by Rebecca Skloot

64 reviews

franklola's review against another edition

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dark emotional reflective sad slow-paced

4.25


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sidekicksam's review against another edition

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adventurous emotional informative inspiring reflective medium-paced

5.0

Part education about the HeLa cells and their contribution to the pharmaceutical and medical field, part account of the journey of the Lackses have undertaken together with 'their reporter' Miss Rebecca, to discover more about the life of their mother Henrietta. Despite HeLa's invaluable contribution to the advancement in medicine, the family she left behind is left with nothing but questions.  

I thoroughly enjoyed this book, learning about medical practices in the fifties (and their very unethical conduct), the advancement of science thanks to nameless and uninformed 'donors,' and the life of a woman made immortal by her cancer-cells. Instead of reading as a boring non-fiction novel, Skloot's decision to involve the quest for the truth she went on (mainly with Deborah/Dale) made it so much more heartwarming to read. 

I consider this to be essential reading for everyone working in medicine/pharma and have a good hard look at the ethics of the use of cells without informed consent. I'd recommend this book to anyone. 

Easy 5 stars! 

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creationwing's review against another edition

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challenging emotional informative reflective medium-paced

4.25

I wasn't a huge fan of the attempts at Chinese and Austrian accents by the audiobook reader. It felt off in a book with themes so closely tied to facing racism. It didn't help that they weren't very well done, either.

There were moments when the book seemed a little too voyeuristic for my taste; I'm not sure that all the details included were necessary for me to learn about this historic figure, her family's struggles, and have understanding of the suffering and unjustice.

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jcstokes95's review against another edition

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challenging dark emotional informative sad tense slow-paced

3.5

If you are currently in a multi-year pandemic situation where medical advice feels slippery and the policy even slipperier, I would not advise reading this. Because, it will make you feel even more suspicious of doctors. I love science, super glad to have it, doctors and nurses save lives. But also, I have to admit, I do not always trust them. I live in a body that is often overlooked by the medical profession. And while I immensely respect medical professionals, I do not believe in following anything blindly. And man, does this book lay out every potential horror that can happen if you are unable to make educated choices about your health due to racism, classism, etc. 

Truly, this book is horror after horror. But I feel like I gained an even clearer understanding of the racial bias in the medical system. And the incredible importance of patient consent, which still seems to be an issue in regards to tissue ownership. Skloot does a very good job giving you digestible chunks of medical history. I found the portions about the Lacks family very hard to read. This book was very slow for me because there is only so much sexual abuse, racism, incest, death, etc. that I could take at a time. But I appreciate that Skloot doesn't seem to shy away from the hard truths about the family. Like them or not though, every person has a right to consent and every family has a right to privacy in their medical dealings. Neither of these was given to this family. 

The part in this book that wavers for me is the last portion. I don't mind Skloot inserting herself into the narrative, but I found a lot of the focus on Deborah's health to be difficult to read, and not additive. I also do think there are some weird ethical implications of taking a person that fragile and pushing them to do traumatic work. Particularly when you are White and will profit directly, and they are Black and will not. But, the Lacks family seems to trust her and I am glad in some way they felt they had a champion to tell the story for them. A mixed bag and a hard read, but I feel I learned something new in every part.

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academicanko's review against another edition

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emotional informative reflective medium-paced

5.0

Henrietta Lacks is a name unknown to most, however, she may be the most important women to medical science of all time. She was a black woman living in the south in America. Henrietta Lacks had cancer tissue cultures taken from her without her consent and those cells became the first ever immortal cells. 
She later died after those cultures were taken.
Her cells are used to create vaccines and medicines to this day. They were even use to help develop the corona virus vaccines. However, her family has not seen a cent of this money. This book goes over the author and her interactions with the family and the research the cells have supported. She mostly speaks with the youngest daughter, Deborah Lacks. Deborah did not know much about her mother and her older sister, Elsie. This family's plight and trauma is vast. They have been harassed and abused. They have a plethora of health concerns but cannot afford insurance. I cried throughout this book just thinking about their circumstances. 

This books opens the conversation to consent and much more. What does research allow and does my autonomous rights cover cells? Now technology is advanced enough to understand DNA. Is it really okay to have my DNA abused in ways I have no control? Who should get compensation? Hasn't commercialization of pharmaceuticals hindered science more than helped it? America has always had a horrible situation when it comes to health care and insurance. It is one of the reasons I live abroad. 

When doing more research on this book, I have noticed that many criticize the author for her way of approaching the family. I later learned that this book has challenged to be banned from some states. I have also found that the remaining family did not like the way the family was portrayed in the book. I like to believe that the author had gotten the consent of Deborah when planning this book and that the things she included were important to her as a descendent of Henrietta. I like to think and I really hope that the authors intentions were true. I think this story is very important and one that must be more widely known. 

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udari's review against another edition

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challenging emotional informative reflective sad medium-paced

5.0


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elizabethgreads's review against another edition

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hopeful informative reflective medium-paced

4.0

I enjoyed the way this book was told.  It flips back and forth between the science, history, and ethics of tissue and cell culture and the Life of Henrietta Lacks and her family. This is an incredibility important story that I think everyone should read.  The author does a great job of describing scientific terms in such away that the reader can understand without having much knowledge on the subject. I enjoyed the exploration of the topics of informed consent, medical privacy, research ethics, and commercialization of human cell products.

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julia_ham23's review against another edition

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challenging emotional informative reflective sad medium-paced

4.0


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abookandaspotoftea's review against another edition

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challenging dark emotional hopeful informative reflective sad medium-paced

5.0


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becca_w_'s review against another edition

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challenging emotional informative reflective sad slow-paced

3.75


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