Reviews tagging 'Cancer'

The Immortal Life of Henrietta Lacks by Rebecca Skloot

123 reviews

jcstokes95's review against another edition

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challenging dark emotional informative sad tense slow-paced

3.5

If you are currently in a multi-year pandemic situation where medical advice feels slippery and the policy even slipperier, I would not advise reading this. Because, it will make you feel even more suspicious of doctors. I love science, super glad to have it, doctors and nurses save lives. But also, I have to admit, I do not always trust them. I live in a body that is often overlooked by the medical profession. And while I immensely respect medical professionals, I do not believe in following anything blindly. And man, does this book lay out every potential horror that can happen if you are unable to make educated choices about your health due to racism, classism, etc. 

Truly, this book is horror after horror. But I feel like I gained an even clearer understanding of the racial bias in the medical system. And the incredible importance of patient consent, which still seems to be an issue in regards to tissue ownership. Skloot does a very good job giving you digestible chunks of medical history. I found the portions about the Lacks family very hard to read. This book was very slow for me because there is only so much sexual abuse, racism, incest, death, etc. that I could take at a time. But I appreciate that Skloot doesn't seem to shy away from the hard truths about the family. Like them or not though, every person has a right to consent and every family has a right to privacy in their medical dealings. Neither of these was given to this family. 

The part in this book that wavers for me is the last portion. I don't mind Skloot inserting herself into the narrative, but I found a lot of the focus on Deborah's health to be difficult to read, and not additive. I also do think there are some weird ethical implications of taking a person that fragile and pushing them to do traumatic work. Particularly when you are White and will profit directly, and they are Black and will not. But, the Lacks family seems to trust her and I am glad in some way they felt they had a champion to tell the story for them. A mixed bag and a hard read, but I feel I learned something new in every part.

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udari's review

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challenging emotional informative reflective sad medium-paced

5.0


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jayisreading's review against another edition

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emotional informative medium-paced

3.75

A few days after finishing this book, I’m still struggling to work out how I feel about this book. On the one hand, I’m incredibly grateful that I got to learn so much about Henrietta Lacks, HeLa, as well as the circumstances and history surrounding Lacks and her cells. I don’t venture into science-related books very often, but this one was engaging. On the other hand, I couldn’t help but feel that there was something exploitative about the book, even if Skloot received consent from the Lacks family and everything. I don’t know if it was the way she inserted herself into this narrative or what, but something felt off. I also can’t help but wonder how much financial compensation the Lacks family received for their contributions to this book, as well as from the movie that was made a few years later. From what I’ve gathered on Skloot’s website, it seems like they have, but again, how much?

I’ve been thinking about a quote from the book that really highlights the frustration one may feel about the Lacks family’s situation: “She’s the most important person in the world and her family living in poverty. If our mother so important to science, why can’t we get health insurance?“ I felt so much anger reading this book, not so much because of the topic, but because of the injustices that Henrietta Lacks, her family and, really, the Black community have faced. There’s a lot in this book to digest— Despite my concerns, I think there’s a lot of important information that makes this book worth reading in the end.

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elizabethgreads's review against another edition

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hopeful informative reflective medium-paced

4.0

I enjoyed the way this book was told.  It flips back and forth between the science, history, and ethics of tissue and cell culture and the Life of Henrietta Lacks and her family. This is an incredibility important story that I think everyone should read.  The author does a great job of describing scientific terms in such away that the reader can understand without having much knowledge on the subject. I enjoyed the exploration of the topics of informed consent, medical privacy, research ethics, and commercialization of human cell products.

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sydneya22's review against another edition

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challenging informative reflective slow-paced

4.5


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julia_ham23's review against another edition

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challenging emotional informative reflective sad medium-paced

4.0


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rita250's review against another edition

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challenging emotional informative reflective medium-paced

5.0


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kaceyatwood's review against another edition

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challenging informative reflective sad medium-paced

5.0


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abookandaspotoftea's review against another edition

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challenging dark emotional hopeful informative reflective sad medium-paced

5.0


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becca_w_'s review against another edition

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challenging emotional informative reflective sad slow-paced

3.75


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