Reviews with content warning for Child abuse - The Immortal Life of Henrietta Lacks

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Reviews tagging 'Child abuse'

The Immortal Life of Henrietta Lacks by Rebecca Skloot

100 reviews

charlotttemare's review against another edition

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challenging emotional informative inspiring medium-paced

3.25

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academicanko's review against another edition

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emotional informative reflective medium-paced

5.0

Henrietta Lacks is a name unknown to most, however, she may be the most important women to medical science of all time. She was a black woman living in the south in America. Henrietta Lacks had cancer tissue cultures taken from her without her consent and those cells became the first ever immortal cells.

She later died after those cultures were taken.

Her cells are used to create vaccines and medicines to this day. They were even use to help develop the corona virus vaccines. However, her family has not seen a cent of this money. This book goes over the author and her interactions with the family and the research the cells have supported. She mostly speaks with the youngest daughter, Deborah Lacks. Deborah did not know much about her mother and her older sister, Elsie. This family's plight and trauma is vast. They have been harassed and abused. They have a plethora of health concerns but cannot afford insurance. I cried throughout this book just thinking about their circumstances.

This books opens the conversation to consent and much more. What does research allow and does my autonomous rights cover cells? Now technology is advanced enough to understand DNA. Is it really okay to have my DNA abused in ways I have no control? Who should get compensation? Hasn't commercialization of pharmaceuticals hindered science more than helped it? America has always had a horrible situation when it comes to health care and insurance. It is one of the reasons I live abroad.

When doing more research on this book, I have noticed that many criticize the author for her way of approaching the family. I later learned that this book has challenged to be banned from some states. I have also found that the remaining family did not like the way the family was portrayed in the book. I like to believe that the author had gotten the consent of Deborah when planning this book and that the things she included were important to her as a descendent of Henrietta. I like to think and I really hope that the authors intentions were true. I think this story is very important and one that must be more widely known.

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larkiereads's review against another edition

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challenging dark emotional hopeful informative mysterious reflective sad tense medium-paced

5.0

What a book. What an incredible story, told brilliantly. I'd heard of Henrietta Lacks and the HeLa cells before, but I'm not a biologist, and the scope of this book always seemed intimidating. However, Skloot's writing is fascinating and accessible, and every time I found myself asking more questions on a topic and thinking of doing some Googling for clarification, she would swoop in and answer my questions nearly and concisely.

This book reads like a mystery, and although it never had me quite on the edge of my seat, I kept wanting to return to it to find out what happened next. She alternates between science history (and simple explanations of the science itself) and biography, discussing not only Henrietta's life and the advancements made with HeLa cells, but also her own search for information. The book moves along fairly quickly, and even though Rebecca is an active participant, she never centers herself and her reporting over the Lacks family and their experiences. She doesn't hold back, good or bad (or very very bad), and clearly establishes that this book is a collaboration.

I could go into the minutiae of everything this book did well, but I'm sure there are more in depth reviews out there that would do a better job. I want to close this review by saying that everyone should read this book. We owe so much of our medical advancements in the last 60 years to Henrietta Lacks, and there is ongoing debate about informed consent in tissue research and gene copyrights that affect us all. On top of that, I feel like I understand more about medical research because I've read it. And it was (mostly) fun to read! The writing and craft in this book are absolute perfection. Please give it a try.

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udari's review

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challenging emotional informative reflective sad medium-paced

5.0

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jayisreading's review against another edition

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emotional informative medium-paced

3.75

A few days after finishing this book, I’m still struggling to work out how I feel about this book. On the one hand, I’m incredibly grateful that I got to learn so much about Henrietta Lacks, HeLa, as well as the circumstances and history surrounding Lacks and her cells. I don’t venture into science-related books very often, but this one was engaging. On the other hand, I couldn’t help but feel that there was something exploitative about the book, even if Skloot received consent from the Lacks family and everything. I don’t know if it was the way she inserted herself into this narrative or what, but something felt off. I also can’t help but wonder how much financial compensation the Lacks family received for their contributions to this book, as well as from the movie that was made a few years later. From what I’ve gathered on Skloot’s website, it seems like they have, but again, how much?

I’ve been thinking about a quote from the book that really highlights the frustration one may feel about the Lacks family’s situation: “She’s the most important person in the world and her family living in poverty. If our mother so important to science, why can’t we get health insurance?“ I felt so much anger reading this book, not so much because of the topic, but because of the injustices that Henrietta Lacks, her family and, really, the Black community have faced. There’s a lot in this book to digest— Despite my concerns, I think there’s a lot of important information that makes this book worth reading in the end.

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