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krislenda's review
5.0
Personal preference: I am going to pass on rating personal essays. I do not feel comfortable judging other people's life experiences, that is just not my place.
That being said, the rest of the work was excellent and touched on aspects of ableism that I barely notice myself as a disabled, chronically ill person (whether that's due to internal ableism or just a lack of thought is another question, frankly I am not opening that can of worms in 2020).
A quote that really had me weeping, however, was this one.
I think this might be the first time I felt really seen in a literary work.
The passageway leads to a spiralling staircase.
Back on Earth, I wouldn't be able to climb anything so steep.
But ability is contextual.
Whatever we're able to do - and whatever meaning we make of that- changes from one environment to another.
We make all of our own environments now.
To design a place that others can't possibly move through or inhabit is the same as raising up a drawbridge, dropping down a toothy portcullis, or punching a row of murder holes through a ceiling.
It writes down a clear, solid message in the language of architecture: You are not welcome here. You don't even have the right to exist here. Please cease to exist as soon as possible.
That's what the stairs would have said to me, back on Earth. But we aren't on Earth.
I bound up that staircase, which cannot object.
For that, thank you.
That being said, the rest of the work was excellent and touched on aspects of ableism that I barely notice myself as a disabled, chronically ill person (whether that's due to internal ableism or just a lack of thought is another question, frankly I am not opening that can of worms in 2020).
A quote that really had me weeping, however, was this one.
I think this might be the first time I felt really seen in a literary work.
The passageway leads to a spiralling staircase.
Back on Earth, I wouldn't be able to climb anything so steep.
But ability is contextual.
Whatever we're able to do - and whatever meaning we make of that- changes from one environment to another.
We make all of our own environments now.
To design a place that others can't possibly move through or inhabit is the same as raising up a drawbridge, dropping down a toothy portcullis, or punching a row of murder holes through a ceiling.
It writes down a clear, solid message in the language of architecture: You are not welcome here. You don't even have the right to exist here. Please cease to exist as soon as possible.
That's what the stairs would have said to me, back on Earth. But we aren't on Earth.
I bound up that staircase, which cannot object.
For that, thank you.
else's review
5.0
I'm very much not a short story or non-fiction reader but I love this collection!
I'm using this space to keep a record of which stories I read and my rating.
EDITORIAL
"The Disabled People Destroy Science Fiction Manifesto" by Elsa Sjunneson-Henry and Dominik Parisien
FICTION
✓ “Fiction Introduction” by Dominik Parisien ★★★★★
✓
I'm using this space to keep a record of which stories I read and my rating.
EDITORIAL
"The Disabled People Destroy Science Fiction Manifesto" by Elsa Sjunneson-Henry and Dominik Parisien
FICTION
✓ “Fiction Introduction” by Dominik Parisien ★★★★★
✓
mikewhiteman's review
4.0
The House On The Moon - William Alexander ***
Birthday Girl - Rachel Swirsky ***
An Open Letter To The Family - Jennifer Brozek **
Heavy Lifting - AT Greenblatt ***
The Frequency Of Compassion - Merc Fenn Wolfmoor ***
The Stars Above - Katharine Duckett ***
The Things I Miss The Most - Nisi Shawl ***
Abigail Dreams Of Weather - Stu West ***
A House By The Sea - PH Lee ***
Disconnect - Fran Wilde ****
This Will Not Happen To You - Marissa Lingen ***
By Degrees And Dilatory Time - SL Huang ***
Listen - Karin Tidbeck ****
Birthday Girl - Rachel Swirsky ***
An Open Letter To The Family - Jennifer Brozek **
Heavy Lifting - AT Greenblatt ***
The Frequency Of Compassion - Merc Fenn Wolfmoor ***
The Stars Above - Katharine Duckett ***
The Things I Miss The Most - Nisi Shawl ***
Abigail Dreams Of Weather - Stu West ***
A House By The Sea - PH Lee ***
Disconnect - Fran Wilde ****
This Will Not Happen To You - Marissa Lingen ***
By Degrees And Dilatory Time - SL Huang ***
Listen - Karin Tidbeck ****
wyvernfriend's review
4.0
More Hugo Reading This was interesting and made me think and this is why I'm adding it here.
ETA: This is a bit long.
It brought up some of the anxiety I have annually when work wants me to sign the Disability Survey, the question they ask is if you have a physical or mental condition that impacts your ability to enjoy life (paraphrased but essentially the gist of it). And every year I have to admit that yes, I have things wrong with me that get in the way sometimes.
I'm probably Coeliac (and this is what I tell waiters); I started to get stomach problems that people (and doctors) dismissed if I ate more than one portion of gluten-containing foods per day and then even that became horrible (I won't go into details except it took two days to get over it). After being sent to the A&E (ER for US readers) because I got terribly ill on a holiday with my folks, I had to admit that something was very wrong. However I got into trouble with work about my sick leave, so, it appeared to be Gluten so I eliminated it. I didn't get an appointment with a gastroenterologist for a while so by the time I had the test I was healing. She asked what I had done. I told her. She said that I was probably Coeliac but she couldn't confirm it officially but to stay off the gluten. I have (mostly) but sometimes it's work to find a restaurant to eat. Nothing is spontaneous, I research places almost obsessively. I can't just look at a restaurant and say "that looks good" no matter how tired, foot-sore or leg-weary I am. And I still get "poisoned" semi-regularly; we won't discuss how I end up at events almost fighting over the meager gluten free offerings. I get very upset at those who can eat gluten who eat "my" food because it "looks good". Don't get me started on those asshats who have some places ask "medical or choice" when I say I'm Coeliac/Gluten Free.
I also have bad feet (another way you can start me on a rant is to suggest I walk more for my health, I have had 2 Physiotherapists suggest that walking is the last exercise they would suggest.) I have flat feet and overdeveloped calves, I tore a calf muscle (fun! Ultrasound afterwards, because Chemo!) walking a short distance down a street, in sensible sandals. I also have a lower-back/hip injury (it's my lower back but it manifests as my hip, bodies are strange) that acts up, sometimes after walking for more than 20 minutes - I start to drag my foot. And you know when you're sitting and you put your foot on your opposite knee to massage your foot/calves/stretch your hip? Yeah, I have to reach down and pull my foot onto my knee. It doesn't like doing that. Right now it's less sore than it was this morning, I did minor stretches to get it to less screaming. Let's not get into how my body does not like the yoga resting pose of Child's Pose. My ass and heels do not meet, I can often get a yoga block into the space. However I can do forward bends; warrior poses and stuff like that like a boss.
I have an injury to my writing hand shoulder. Good news, it led me to embracing fountain pens, bad news I have serious issues these days with crochet. Bone deep pain. Right now it's sore. I have no idea what I did to aggravate it.
That's just the obvious messy stuff, there's the sinus headaches that I suffer from regularly enough that I end up with an almost annual sinus infection; the suspected adult onset hay fever; the post-chemotherapy lung damage from Bleomycin and the depressed immune system from the same chemotherapy.
Yeah I'm almost 50 and I could probably do some things to improve some of these. I do regular Yoga, I try to do stuff but some days my spoons are gone. Being awake enough to ensure I hydrate and eat can be the miracles. I would like some health gurus to live in my body and tell me that fixing some of this stuff is easy. Their bland platitudes are so annoying. Yes I know that if I got more fit I could probably reduce some of the issues.
This isn't even going near the timebomb that is my liver (it constantly tests high, possibly as it took over too much of the work from my lymph system when I had Hodgkin's Lymphoma but it's also a bit hyperactive since) and the fact that I'm on blood pressure drugs. And yes, my liver is possibly not happy with the cocktail that keeps me moving, however I am in my doctors office on a regular basis to get checked up. (This is one of my problems with the idea of getting your prescription remotely, yes you're probably fine but the people who see you regularly are the pharmacy staff and the GP, I love the pharmacy staff we see in ours, they know us well enough to ask if we're okay when we're not, and occasionally advise GP stat moments).
ETA 2: and we almost forgot the chronic Hidradenitis suppurativa that litters one of my armpits and my upper legs. (don't follow the link if you're squeamish, but yes my underarm looks a lot like that)
This doesn't even go near the stress that has had me shatter two teeth, even with a nightguard.
Also the next person to ask me why I didn't have kids? Yeah. They will get the laundry list of this, it takes most of my energy to deal with this body, I'm barely coping with it.
And with this laundry list I still hesitate about marking myself as disabled. To me that sometimes sounds like it's final, that I have to live with the concept that this is as good as it gets and that doesn't sit well, even if I'm not really currently doing enough to help myself.
Then I read this. It's a mixed bag of fiction and think pieces and made me do a lot of thinking about life and what I have and that really when you think about it, we're all disabled in some way. We need to think differently about disability, that it's a spectrum, not a black or white issue. I remember listening to 99% invisible, IIRC, where it pointed out that ramps in shops and on paths helped people with prams more than people with wheelchairs an unintended benefit. Making things accessible doesn't make other people's lives worse, it makes everyone's life better.
Restaurants still need to do a bit better with allergies and online menus and search tags.
ETA: This is a bit long.
It brought up some of the anxiety I have annually when work wants me to sign the Disability Survey, the question they ask is if you have a physical or mental condition that impacts your ability to enjoy life (paraphrased but essentially the gist of it). And every year I have to admit that yes, I have things wrong with me that get in the way sometimes.
I'm probably Coeliac (and this is what I tell waiters); I started to get stomach problems that people (and doctors) dismissed if I ate more than one portion of gluten-containing foods per day and then even that became horrible (I won't go into details except it took two days to get over it). After being sent to the A&E (ER for US readers) because I got terribly ill on a holiday with my folks, I had to admit that something was very wrong. However I got into trouble with work about my sick leave, so, it appeared to be Gluten so I eliminated it. I didn't get an appointment with a gastroenterologist for a while so by the time I had the test I was healing. She asked what I had done. I told her. She said that I was probably Coeliac but she couldn't confirm it officially but to stay off the gluten. I have (mostly) but sometimes it's work to find a restaurant to eat. Nothing is spontaneous, I research places almost obsessively. I can't just look at a restaurant and say "that looks good" no matter how tired, foot-sore or leg-weary I am. And I still get "poisoned" semi-regularly; we won't discuss how I end up at events almost fighting over the meager gluten free offerings. I get very upset at those who can eat gluten who eat "my" food because it "looks good". Don't get me started on those asshats who have some places ask "medical or choice" when I say I'm Coeliac/Gluten Free.
I also have bad feet (another way you can start me on a rant is to suggest I walk more for my health, I have had 2 Physiotherapists suggest that walking is the last exercise they would suggest.) I have flat feet and overdeveloped calves, I tore a calf muscle (fun! Ultrasound afterwards, because Chemo!) walking a short distance down a street, in sensible sandals. I also have a lower-back/hip injury (it's my lower back but it manifests as my hip, bodies are strange) that acts up, sometimes after walking for more than 20 minutes - I start to drag my foot. And you know when you're sitting and you put your foot on your opposite knee to massage your foot/calves/stretch your hip? Yeah, I have to reach down and pull my foot onto my knee. It doesn't like doing that. Right now it's less sore than it was this morning, I did minor stretches to get it to less screaming. Let's not get into how my body does not like the yoga resting pose of Child's Pose. My ass and heels do not meet, I can often get a yoga block into the space. However I can do forward bends; warrior poses and stuff like that like a boss.
I have an injury to my writing hand shoulder. Good news, it led me to embracing fountain pens, bad news I have serious issues these days with crochet. Bone deep pain. Right now it's sore. I have no idea what I did to aggravate it.
That's just the obvious messy stuff, there's the sinus headaches that I suffer from regularly enough that I end up with an almost annual sinus infection; the suspected adult onset hay fever; the post-chemotherapy lung damage from Bleomycin and the depressed immune system from the same chemotherapy.
Yeah I'm almost 50 and I could probably do some things to improve some of these. I do regular Yoga, I try to do stuff but some days my spoons are gone. Being awake enough to ensure I hydrate and eat can be the miracles. I would like some health gurus to live in my body and tell me that fixing some of this stuff is easy. Their bland platitudes are so annoying. Yes I know that if I got more fit I could probably reduce some of the issues.
This isn't even going near the timebomb that is my liver (it constantly tests high, possibly as it took over too much of the work from my lymph system when I had Hodgkin's Lymphoma but it's also a bit hyperactive since) and the fact that I'm on blood pressure drugs. And yes, my liver is possibly not happy with the cocktail that keeps me moving, however I am in my doctors office on a regular basis to get checked up. (This is one of my problems with the idea of getting your prescription remotely, yes you're probably fine but the people who see you regularly are the pharmacy staff and the GP, I love the pharmacy staff we see in ours, they know us well enough to ask if we're okay when we're not, and occasionally advise GP stat moments).
ETA 2: and we almost forgot the chronic Hidradenitis suppurativa that litters one of my armpits and my upper legs. (don't follow the link if you're squeamish, but yes my underarm looks a lot like that)
This doesn't even go near the stress that has had me shatter two teeth, even with a nightguard.
Also the next person to ask me why I didn't have kids? Yeah. They will get the laundry list of this, it takes most of my energy to deal with this body, I'm barely coping with it.
And with this laundry list I still hesitate about marking myself as disabled. To me that sometimes sounds like it's final, that I have to live with the concept that this is as good as it gets and that doesn't sit well, even if I'm not really currently doing enough to help myself.
Then I read this. It's a mixed bag of fiction and think pieces and made me do a lot of thinking about life and what I have and that really when you think about it, we're all disabled in some way. We need to think differently about disability, that it's a spectrum, not a black or white issue. I remember listening to 99% invisible, IIRC, where it pointed out that ramps in shops and on paths helped people with prams more than people with wheelchairs an unintended benefit. Making things accessible doesn't make other people's lives worse, it makes everyone's life better.
Restaurants still need to do a bit better with allergies and online menus and search tags.
ashlanswain's review
4.0
I took my time digesting this one, but there's a lot of really lovely work in here. When I bought it, I only had short stories in mind, and I wasn't sure if I'd like the balance of fiction, poetry, and nonfiction/essays. I ended up rotating between sections, reading a piece or two from each, so it felt like different parts of the issue were talking to each other. Now that I've gotten to the end, I think that blend of approaches was perfect, like when you mix two flavors together and find a whole new taste. Many thanks and kudos to all the editors and creators who were part of this collection.
Any favorites list is a bit distorted by the time it took me to read, but some of the pieces that really stick out in my memory: "The things I miss the most" by Nisi Shawl, "Design a spaceship" by Andi C. Buchanan, "All the stars above the sea" by Sarah Gailey, "You wanted me to fly" by Julia Watts Belser, "From rabbit holes to wormholes: KidLit memories" by Alice Wong. I could go on, but the issue gave me a lot to think about, which is what the best science fiction does.
Any favorites list is a bit distorted by the time it took me to read, but some of the pieces that really stick out in my memory: "The things I miss the most" by Nisi Shawl, "Design a spaceship" by Andi C. Buchanan, "All the stars above the sea" by Sarah Gailey, "You wanted me to fly" by Julia Watts Belser, "From rabbit holes to wormholes: KidLit memories" by Alice Wong. I could go on, but the issue gave me a lot to think about, which is what the best science fiction does.
apostrophen's review
4.0
I'll be delving into the rest of the tales in this anthology during my Short Stories 366 project over the year, but suffice it to say I really enjoyed the collection as a whole (the fiction portion especially). Unlike [b:Queers Destroy Science Fiction!: Lightspeed Magazine Special Issue; The Stories|36036810|Queers Destroy Science Fiction! Lightspeed Magazine Special Issue; The Stories|Seanan McGuire|https://i.gr-assets.com/images/S/compressed.photo.goodreads.com/books/1513980953l/36036810._SX50_.jpg|57609393] (which I also enjoyed), this anthology didn't strike me anywhere near as relentlessly dark, and in fact, I'd say the majority of the stories came down on the hopeful/optimistic side.
Story-by-story reviews will pop up on my blog under this tag, and a few already have over 2019's "Sunday Shorts" where I talked about a short story every Sunday.
Story-by-story reviews will pop up on my blog under this tag, and a few already have over 2019's "Sunday Shorts" where I talked about a short story every Sunday.
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