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A review by jeanz
A Guide to Living with Ehlers-Danlos Syndrome (Hypermobility Type): Bending Without Breaking by Isobel Knight, Alan J. Hakim
5.0
INITIAL THOUGHTS
So initial thoughts upon finishing this book; Truthfully I have felt a whole range of emotions from feeling useless and perhaps somewhat depressed, to feeling understood, and been given hope that if you ask loud enough and go along with information from this book that maybe there is help out there.
MY REVIEW
This is a great book for anyone both newly diagnosed and those who have had a diagnosis a while.. The book is written with knowledge of the problems we suffer from. Myself and my 19 year old daughter have Ehlers Danlos Syndrome Hypermobility Type so I know how useful this book is first hand, it should be read by all Doctors, Gps, Nurses, Physiotherapists etc. This book is informative, factual, written in terms that a "normal" "non medical" person can easily understand. It answers the questions that a person with this syndrome asks, but may not receive forthcoming answers from the medical profession around them..
So my thoughts upon finishing this book; truthfully I have felt a whole range of emotions from feeling useless and perhaps somewhat depressed, to feeling understood, and been given hope that if you ask loud enough and go along with information from this book that maybe there is help out there. I honestly feel a little more positive about going to the Rehabilitation centre at my local hospital to see an occupational therapist for help and perhaps referrals to other departments that could help too.
Sadly the NHS no longer has a specialist centre at Leeds and my quota of occupational therapy at my local hospital got me some advice on finger splints, I was given wrist splints, for one wrist (I've since bought a splint for my other wrist) and compression gloves but then I had used my time up. So this is a daily struggle I have to . . . as the rheumatologist that finally diagnosed me said "Learn to live with your condition."
This book is full of useful information, so I would recommend it to those who have EDSHT.
So initial thoughts upon finishing this book; Truthfully I have felt a whole range of emotions from feeling useless and perhaps somewhat depressed, to feeling understood, and been given hope that if you ask loud enough and go along with information from this book that maybe there is help out there.
MY REVIEW
This is a great book for anyone both newly diagnosed and those who have had a diagnosis a while.. The book is written with knowledge of the problems we suffer from. Myself and my 19 year old daughter have Ehlers Danlos Syndrome Hypermobility Type so I know how useful this book is first hand, it should be read by all Doctors, Gps, Nurses, Physiotherapists etc. This book is informative, factual, written in terms that a "normal" "non medical" person can easily understand. It answers the questions that a person with this syndrome asks, but may not receive forthcoming answers from the medical profession around them..
So my thoughts upon finishing this book; truthfully I have felt a whole range of emotions from feeling useless and perhaps somewhat depressed, to feeling understood, and been given hope that if you ask loud enough and go along with information from this book that maybe there is help out there. I honestly feel a little more positive about going to the Rehabilitation centre at my local hospital to see an occupational therapist for help and perhaps referrals to other departments that could help too.
Sadly the NHS no longer has a specialist centre at Leeds and my quota of occupational therapy at my local hospital got me some advice on finger splints, I was given wrist splints, for one wrist (I've since bought a splint for my other wrist) and compression gloves but then I had used my time up. So this is a daily struggle I have to . . . as the rheumatologist that finally diagnosed me said "Learn to live with your condition."
This book is full of useful information, so I would recommend it to those who have EDSHT.