A review by nwhyte
Neurotribes: The Legacy of Autism and the Future of Neurodiversity by Steve Silberman

challenging reflective slow-paced

5.0

https://fromtheheartofeurope.eu/neurotribes-the-legacy-of-autism-and-how-to-think-smarter-about-people-who-think-differently-by-steve-silberman-and-a-mini-bibliography/

A big thick prize-winning book by the late Steve Silberman, looking in detail at the history and practice of autism and neurodiversity, and how American society (and by extension, Western society) is coming to terms with making accommodations for people who, as he puts it, ʎlʇuǝɹǝɟɟᴉp ʞuᴉɥʇ.

There were a couple of chapters that really grabbed my attention. One was a section about Hugo Gernsback, who set up science fiction fandom as a safe space for people to be geeks and nerds, and whose own behaviour is recognisably on the spectrum now – for instance, his invention, the Isolator, allows you to concentrate on the text you are reading without sensory distraction and even has its own air supply.

The other striking chapter is very much less fun, looking at the early twentieth-century eugenics movement and at the Nazi policy of killing neurodiverse children. The psychiatrists responsible for these murders survived into successful post-war careers in Austria. It is pretty stomach-churning.

The story of the struggle for autism is generally pretty tough, though it has a hopeful end. I can see both sides; in the initial grief and confusion after B’s diagnosis back in 2000, I too was desperate to find a way that she could be ‘cured’, and I know of other parents in a similar situation who spent vast amounts of time, money and emotional labour on snake oil solutions for their children. 

I fairly quickly came around to acceptance that our family was following our own path, and that society needs to adapt to our children’s needs more than the other way round. It’s a tough path all the same, and I felt many moments of solidarity with the people whose lives are discussed in Neurotribes; though the book doesn’t include much on those who are as cognitively disabled as our daughters. 

The book also concentrates very much on the US policy landscape with only brief looks at what is going on in other counties (and nothing at all about Belgium). But I found it helpful in understanding my own thinking in any case.