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gracerussell 's review for:
From the start, this book is heartbreaking and powerful. The writing brings back to life a strong and innocent child who has no control over the cards life has dealt her. I don’t know that anyone can ever know if every decision made for a child was the right one, especially in caring for a child with a terminal illness complicated by questions of guardianship and international travel. This book mostly details the fight against DIPG, but the last chapter describes Chika receiving what sounds like hospice services. Giving four stars just because pediatric hospice and palliative care are incredibly important options, and this book doesn’t seem to give this care the recognition it deserves. Of course this is not the purpose of the book, so it really achieves what it sets out to do, telling a story of bravery and grace in a young child facing hardship beyond understanding.