A review by bobbykarmakar
Every Note Played by Lisa Genova

5.0

Remember the Ice Bucket Challenge?

Back in the summer of 2014, people were nominated on social media to either pour a bucket of ice water over their head on video to be posted or donate to an ALS association. Some did both. Others gave instead of pouring a bucket of ice water over their head. The point was to raise awareness of ALS. I, for one, still did not know what ALS truly was, the bearing on someone diagnosed with it, and its impact on others. And that is why I am grateful for Every Note Played.

I believe that pouring a bucket of ice water over your head also does not best exemplify what ALS can genuinely do because that indeed was what I thought it felt like to have ALS. Maybe others too interpreted the same. In Every Note Played, Lisa Genova, who is a neuroscientist herself, explores what it actually does to someone with ALS, as well as their families.

This depiction of what a family with ALS can do to someone, whether diagnosed or in some way related, is possibly the best example I would refer others to, like Lisa Genova’s other novels as well, which I all enjoyed. The fiction in a real-life situation provides the best example of a glimpse into a family’s life, let alone the person. Additionally, the writing is also something to be admired for as well that coincides with Richard, our main lead who is unfortunately diagnosed with ALS.

Though Richard and Karina are divorced, and Karina voluntarily becomes his caregiver, there are personal regrets and secrets they both shared. Though I am not supportive in Richard’s faults, this novel gave a glimpse that no matter what anyone does, ALS is undoubtedly a disease that should not be wished upon someone, nor have to face. It is my hope for others who read this story that treatment, and more hopefully a cure, will soon be discovered.

Until then, instead of pouring buckets of ice water, I suggest reading Every Note Played, begin a conversation, and spread awareness.