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3.7 AVERAGE
3.7 AVERAGE
Sarah Ramey geht eines Tages schwimmen. Als gesunde Frau geht sie in den See, als chronisch Kranke kommt sie wieder heraus. Ihre Symptome sind vielfältig, unangenehm und vor allem eins: nicht nachweisbar. Und so beginnt für Ramey eine Ärzte-Odyssey sondergleichen.
"Der Club der hysterischen Frauen" hat mich aufgrund seines Titels und des Klappentextes angezogen. Krankheiten, die vor allem weibliche Personen betreffen, werden immer noch nicht so ernst genommen wie Krankheiten, die auch männliche Personen betreffen. Über die Hintergründe und wie man dagegen ankämpfen kann, wollte ich mehr erfahren.
Das Buch ist eine Mischung aus Erfahrungen der Autorin und recherchierten Artikeln. Leider konnte mich ihr Stil nicht überzeugen. Für mich war er zu poetisch, zu wenig ernst und teilweise drehte ich mich gemeinsam mit Sarah Ramey immer und immer wieder im Kreis. Das ist eine akkurate Darstellung von chronischer Krankheit, doch für mich führte die Lektüre dadurch ins Nichts.
Bei circa einem Drittel des Buches fing ich an querzulesen und bemerkte, dass dieser Roman nichts neues mehr bereit hielt. Echt schade!
"Der Club der hysterischen Frauen" hat mich aufgrund seines Titels und des Klappentextes angezogen. Krankheiten, die vor allem weibliche Personen betreffen, werden immer noch nicht so ernst genommen wie Krankheiten, die auch männliche Personen betreffen. Über die Hintergründe und wie man dagegen ankämpfen kann, wollte ich mehr erfahren.
Das Buch ist eine Mischung aus Erfahrungen der Autorin und recherchierten Artikeln. Leider konnte mich ihr Stil nicht überzeugen. Für mich war er zu poetisch, zu wenig ernst und teilweise drehte ich mich gemeinsam mit Sarah Ramey immer und immer wieder im Kreis. Das ist eine akkurate Darstellung von chronischer Krankheit, doch für mich führte die Lektüre dadurch ins Nichts.
Bei circa einem Drittel des Buches fing ich an querzulesen und bemerkte, dass dieser Roman nichts neues mehr bereit hielt. Echt schade!
challenging
dark
emotional
medium-paced
Written in a patronizing tone. The author had the time, money, and family support to spend years figuring out what was wrong. Bad doctors but traditional medicine figured it out.
I’ve been meaning to write this for a while, I stopped this book a LONG time ago and have had many feelings since. I didn’t finish it, because quite frankly it was a gendered, ableist mess, and I started getting viscerally angry while reading. I had so much faith in the first half, when she was explaining her story, because I resonated a lot. But what’s sad is her “research” and bottom line all comes down the same shit we hear from doctors all the time, that the best way to health is exercise, healthy eating and a positive attitude.
I’m so fucking sick of it. I thought this was going to be a memoir about our struggles, and challenges, about how to survive in an ableist society. Instead it’s the same ableist garbage I hear from everyone all the time and akin to “have you tried essential oils?” “What about yoga?” This is not helpful. To anyone. A good portion of people with chronic illness have real, debilitating disorders that cannot be “cured” or fixed by a diet. In fact some chronic illnesses require “unhealthy” diets just to survive!
I don’t even want to get into how gendered and transphobic this mess was either. Like the author just forgot trans and non-binary people exist. She kept calling it the “divine feminine” and other weird gendered terms that are completely unnecessary AND outdated in the medical field. Started going on a whole spiel about the “female brain” and I almost threw my phone in the dumpster.
How hard is inclusion? Especially in medical care? 1 in 1000 people are intersex. Not even getting into the amount of trans and non-binary people that exist, that’s MILLIONS of people who don’t match your gendered world view about biology and medicine. You just dismissed and ignored a large fraction of the chronic illness community with that language as if the trans community isn’t dismissed enough in the medical industry AS IS. What a hot mess. I stopped reading almost instantly when the weird “divine feminine” shit came up. Over half of my friends with EDS are trans and/or non-binary. This book would have made them feel miserable about themselves.
And lastly I’d like to acknowledge how absolutely fucking privileged this white lady is, and why I am probably done reading stories like this from white women. Both of her parents are doctors, she’s flown around the country, lived in various places that have incredible resources (SOLELY for medical care), clearly has a ton of family money and doesn’t need to work, is able to see the best specialists, and loads more. Not once does she recognize the immense privilege she has. Not once does she recognize that literally none of us have the resources and accessibility she was given. It made me sick. And if you’re going to bring up misogyny in the medical field and leave out racism (or even worse as I’ve read in other reviews, she apparently says misogyny IS racism or is the cause of racism - some wild shit like that), you’re a shit advocate and I don’t even feel bad saying it. Not once did she call herself disabled either, as if it’s a dirty label, as if she WASNT disabled for years.
This whole book (as much as I read anyway) pissed me the fuck off. A bunch of transphobic ableist shite. I literally can’t recommend this to anyone. It’s trash. Please don’t read it.
I’m so fucking sick of it. I thought this was going to be a memoir about our struggles, and challenges, about how to survive in an ableist society. Instead it’s the same ableist garbage I hear from everyone all the time and akin to “have you tried essential oils?” “What about yoga?” This is not helpful. To anyone. A good portion of people with chronic illness have real, debilitating disorders that cannot be “cured” or fixed by a diet. In fact some chronic illnesses require “unhealthy” diets just to survive!
I don’t even want to get into how gendered and transphobic this mess was either. Like the author just forgot trans and non-binary people exist. She kept calling it the “divine feminine” and other weird gendered terms that are completely unnecessary AND outdated in the medical field. Started going on a whole spiel about the “female brain” and I almost threw my phone in the dumpster.
How hard is inclusion? Especially in medical care? 1 in 1000 people are intersex. Not even getting into the amount of trans and non-binary people that exist, that’s MILLIONS of people who don’t match your gendered world view about biology and medicine. You just dismissed and ignored a large fraction of the chronic illness community with that language as if the trans community isn’t dismissed enough in the medical industry AS IS. What a hot mess. I stopped reading almost instantly when the weird “divine feminine” shit came up. Over half of my friends with EDS are trans and/or non-binary. This book would have made them feel miserable about themselves.
And lastly I’d like to acknowledge how absolutely fucking privileged this white lady is, and why I am probably done reading stories like this from white women. Both of her parents are doctors, she’s flown around the country, lived in various places that have incredible resources (SOLELY for medical care), clearly has a ton of family money and doesn’t need to work, is able to see the best specialists, and loads more. Not once does she recognize the immense privilege she has. Not once does she recognize that literally none of us have the resources and accessibility she was given. It made me sick. And if you’re going to bring up misogyny in the medical field and leave out racism (or even worse as I’ve read in other reviews, she apparently says misogyny IS racism or is the cause of racism - some wild shit like that), you’re a shit advocate and I don’t even feel bad saying it. Not once did she call herself disabled either, as if it’s a dirty label, as if she WASNT disabled for years.
This whole book (as much as I read anyway) pissed me the fuck off. A bunch of transphobic ableist shite. I literally can’t recommend this to anyone. It’s trash. Please don’t read it.
dark
emotional
informative
reflective
medium-paced
This book has a lot of helpful info... But it's a total slog! I've been describing it as very "rich white woman" - if you are any other type of person, I am rolling my eyes with you as you read. Either way, as someone with a new chronic lyme disease diagnosis, it was incredibly validating. I'm glad I read it, but I don't recommend it.
I couldn't wait for this book to be over... It was simultaneously horrifying, insightful, and plodding. What the author endured is the stuff of nightmares, and unfortunately I can see how it happened based on even my own limited healthcare experiences. Ramey's book is important because it helps create community and encouragement for those in similar situations, while shedding light on systemic misogyny in our healthcare system. That being said, this book was soooo unnecessarily looonggg and awful.
challenging
emotional
informative
slow-paced
This memoir was poignant and at times viscerally painful to read. Thank you Sarah for sharing your story and your findings so that other folks can advocate for themselves. The medical system is so broken and we have truly failed marginalized communities. Sigh. A hard but important read.
Content Warnings
Graphic: Chronic illness, Medical content, Medical trauma
I agree with the negative reviews here. She needed a better editor! Very disappointing.
I put this down after reading 50 pages and thumbing through the rest of it: it was simply too painful and depressing to read about all she has been through. It was disturbing in another way as well because she is a person of extraordinary privilege whose eventual "recovery" is not possible for those who are poor or otherwise not favored.
2.5 stars. This book seemed to lose the thread a few times. I was of course horrified at the treatment that the author received (but not surprised)... but it’s also wild to me that you can write a whole book about this kind of thing and spend so little time talking about institutional oppression and the intersections of oppression. She talked about sexism plenty, but spent so little time on ableism (and her own internalized ableism), racism in the medical system, etc.